BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation "Move Your Way" Challenge

JOIN US THIS OCTOBER!

Bold Breakthroughs Month | October 1–31, 2026

Join our global Okur-Chung Neurodevelopmental Syndrome (OCNDS) community as we come together throughout the month of October to raise awareness and fund research that brings us closer to better treatments.

Our Community Celebration Weekend is October 10–11, 2026, when families and supporters around the world will share their photos, stories, and activities online. Can't participate that weekend? No problem! Complete your challenge anytime during October and celebrate with us.

Register by September 18, 2026, to help ensure your event T-shirt arrives before Celebration Weekend.

LAST YEAR, YOU MADE A BREAKTHROUGH POSSIBLE

Because of our incredible community, last year's Bold Breakthroughs campaign raised enough to fund a $50,000 pilot research grant. This year, we're working together to fund the next one.

This year, our goal is to raise another $50,000 to fund the next breakthrough in OCNDS research.

Every registration, every donation, and every shared story helps move us forward.

DO I HAVE TO RUN?

Absolutely not!

Bold Breakthroughs is about moving your way—not running a race.

Choose an activity that fits your abilities, interests, and schedule.

You can:

Run

Walk

Roll (wheelchair, walker, scooter, stroller)

Ride a bike

Roller skate or rollerblade

Swim

Hike

Dance

Play golf

Walk your dog

Do 100 push-ups

Create your own challenge

Whether you move for five minutes or five miles, every step helps advance OCNDS research.

THIS YEAR'S THEME: BOLD BREAKTHROUGHS

WHY PARTICIPATE? WHY DONATE?

OCNDS is a lifelong neurodevelopmental condition that significantly impacts the lives of affected individuals and their families.

This year, we're raising $50,000 to support research focused on the priorities identified by families and researchers during our recent scientific convening, including:

Sleep

Speech and language

Anxiety

Intellectual disability

Gastrointestinal health

Drug repurposing

Gene therapy feasibility studies

Your support helps turn these priorities into meaningful scientific progress.

HOW TO PARTICIPATE

Step 1 Register as an individual or create a team. Be sure to enter your T-shirt size and mailing address. (don't want a shirt, no problem, see below)

*Register by September 18 to help ensure your T-shirt arrives before Community Celebration Weekend.

Step 2 Choose your own challenge and complete it anytime during October.

Step 3 Invite your friends, family, coworkers, and neighbors to join your team or support your fundraiser.

Step 4 Share your photos and videos during Community Celebration Weekend (October 10–11) or anytime throughout October to inspire others around the world.

COMMUNITY AWARDS

 Top Fundraiser

 Loudest Family or Team on Social Media

 Most Creative Bold Breakthroughs Photo

REGISTRATION INFORMATION

Adults: $30

Children (ages 2–18): $18

Each registration includes:

One commemorative Bold Breakthroughs event T-shirt*

One digital race bib

*Register by September 18 to help ensure your shirt arrives before Community Celebration Weekend.

Don't need another T-shirt? During registration, you can select "No T-shirt." The value of your shirt will stay with the Foundation to support OCNDS research.