Dash4DESSH 2026

Together, we can make a difference in the lives of those affected by DeSanto-Shinawi Syndrome (DESSH).

Join supporters from around the world as we raise critical funding for DESSH programs, education, research, resources, and therapies. The Dash is athletic-optional and focused on fundraising, awareness, and fun.

Run, walk, roll, or participate in whatever way works best for you. Whether you choose a 5K, a mile, or simply a stroll around your neighborhood, every step helps raise awareness and support for the DESSH community.

Participate wherever you'd like, from a local park, neighborhood street, beach, trail, treadmill, or anywhere else. Join on your own, gather with friends and family, or create a team. Start whenever it's convenient for you between November 7 and November 15, 2026.

New This Year!

For the first time, the Dash for DESSH is 100% donation-based. There is no registration fee, and participants are encouraged to contribute any amount they can. Every dollar helps support the DESSH community.

100% of donations are dedicated to DESSH programs, education, and research.

Show Your DESSH Spirit

We encourage everyone to wear our signature #DASH4DESSH 2026 t-shirt, which will be available soon in the DESSH Shop. http://desshshop.myspreadshop.com Additional DESSH apparel is welcome and all gear are available now at the DESSH Shop.

Share Your Journey

Don't forget to take photos and share them with family, friends, and on social media using #DASH4DESSH. By spreading awareness and sharing your experience, you'll help us reach even more people and make an even greater impact.

No matter where you are in the world, let's come together, get moving, have fun, and make a difference for the DESSH community!